OCRF & Ovarian Cancer National Alliance are now one strong, united, inspiring voice!
Ovarian Cancer Research Fund (OCRF) and the Ovarian Cancer National Alliance (OCNA) have led the way in advocacy, research and support for patients and their families for over 22 years. As of January 2016, we are pleased to announce we are joining together to form Ovarian Cancer Research Fund Alliance (OCRFA), the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. Read the exciting news!


Survivor Stories / Tributes

Susan Lemoine

Personal Description:


My Husband Robert W. Lemoine who is my hero.

Personal Description:

I had been gaining weight since about 2003. Went from 140 pounds to 210 pounds (that’s from a size 10 to a size 16w). Since I was adopted at birth, I had no idea that an aunt of mine had died from ovarian cancer in the year 2000.

All I wanted to do was sleep. My husband was angry because I didn’t want to go anywhere or do anything active anymore.

My urine smelled “funny” no matter how much water I drank. I started having trouble having bowel movements (not at all normal for me) in September of 2007. I woke up one morning toward the end of October 2007 and could not fit into my work pants and went immediately to my GP’s office.

She was out of town and they referred me to a doctor who looked like he is 12 years old. I told him that I could feel something hard in my stomach. He gingerly touched it and told me to go do an enema and gave me some stool softener to take.

The liquid of the enema would not go in.

My husband took me to the emergency room.

We waited from 10am until 4pm (nobody wanted to give the fat lady an enema I guess). They took blood and did a CA125 after looking at an X-Ray. My level was over 800.

The following morning we went to the oncologist’s office. (This was a Friday.) He wanted to put me in the hospital right away, but since they wouldn’t really do anything until Monday I asked to enter on Monday. He couldn’t believe that I wasn’t in pain… just uncomfortable.

Surgery turned out to be unfruitful. The tumor was a G1, stage 4. It had what they call tentacles growing from the tumor attached to my bowels and my abdominal wall. Inoperable. I woke up with a morphine pump, an incision that ran from just under my breastbone, through my bellybutton down to my pelvis, and a loop colostomy.

My husband cried and cried. My son hurried home from St. Louis (to Louisiana). My newly found birthmother (who I shall refer to now as Mamma) and her husband rushed over from Dallas. My daughter gathered some amazing Warriors of Yahweh. I laid in a morphine haze trying to comprehend what was happening.

I was in the hospital from 11/1/07 until 12/4/07. That time.

I went into anaphylactic shock in the oncologist’s clinic 3 times – reaction to the Taxol and Taxotere chemo. Finally after the Genstar (5 day treatment) administered two times of in-hospital stay, combined with the prayers of a million people, an annointing by an apostle from the USSR, and a healing service at a local Pentacostal church, I demanded surgery in March of 2008.

The surgeon was afraid that I wasn’t strong enough for surgery. I could not stand or walk anymore… diapers, the whole 9 yards… Depends are the BEST.

They removed the tumor in April of 08. The path report more or less says that the tumor was dead and that the tentacles were gone. He is still amazed. I am not. I know that I have had a spiritual healing. I spent 7 days on a respirator. I spent 7 more days in CC ICU. I woke up hallucinating.

I spent more weeks in a hospital room. I went home on Mother’s Day.

My sister came from MO and stayed with me for a month so that Bob could work. She is an angel.

In September of 08 we had Hurrican Gustav which put back my colostomy reversal. On Sept. 15th they reversed my colostomy. All systems go now!!!

I go every 4 months to the oncologist for a CA125. So far so good.

In the interim, my Mamma went to her doctor for a CA125. Her doctor didn’t want to do it. She had a fit. He did it. Her level was “elevated” at 48. The ultrasound showed “spots” on her ovaries. She had a laproscopic hysterectomy and her level is normal now (below 38).

Everything happens for a reason… if we had not found each other Mamma would have not known about the need for the test.

Please feel free to email me at ultraclass98@eatel.net. I am absolutely thrilled to have found some other survivors. I also have some hats for any of you with alopecia (sp?) hair loss who would like them and highly recommend Angel Mints from angelmints.com for nausea.

Last updated on: 01/28/2009


Dear Susan,I am at stage 4also my first surgery was July 3 2008 my ca125 was at 7000 my second surgery was Dec 12 2008 they could not remove anything so I live with the tumor I am still on chemo 3 times a month my ca125 is at 106 as of two weeks ago please let me know how you are doing God Bless you and I will keep you in my prays if you would please email me at grandmadebyk@yahoo.com hope to hear from you soon God speed.

Deby Webster – 02/20/2009

Hi susan,

Thank you so much for sharing your heart warming story. You have been through so much yet still are so strong. I too am a Stage 2C survivor and feel that the best part of this disease is hearing from other ovarian cancer survivors. You are all such amazing and strong women and so inspirational. We need to fight the good fight and get the word out to all we know. We need to get the support for OC similar to what is out there for Breast cancer. You are amazing and I am so happy to hear about your spiritual recovery. You are truly blessed. Thanks for sharing and stay well. We need you!

Sue Sears – 06/03/2009

My mom (81) lost her short battle with OvCa on Jan 6, 2009. She was diagnosed late August 2008 and had surgery Sept 3. Stage 3c. Her symptoms? Distended belly, a never ending “yeast infection” and no appetite. Talk to the ladies in your life, get them to know what the symptoms are, let them know that some things aren’t “normal” and you may save a life.
I miss my mom every day – but God gave us many wonderful times, and great memories.
Let’s stop Ovarian cancer NOW.

Meg Salzman – 06/30/2009

At last, smenooe comes up with the “right” answer!

Buckie Buckie – 06/02/2011

Didn’t know the forum rules alolewd such brilliant posts.

Jayan Jayan – 01/23/2012