OCRF & Ovarian Cancer National Alliance are now one strong, united, inspiring voice!
Ovarian Cancer Research Fund (OCRF) and the Ovarian Cancer National Alliance (OCNA) have led the way in advocacy, research and support for patients and their families for over 22 years. As of January 2016, we are pleased to announce we are joining together to form Ovarian Cancer Research Fund Alliance (OCRFA), the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. Read the exciting news!

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Survivor Stories / Tributes

victoria Sgro-Konopka

Personal Description:

Dedication:

To all the brave young girls who have to go through this silent killer. Its destructive and we need to find a cure.

Personal Description:

When I was 19 years old in 1994 I was the youngest female to have ovarian cancer in America. At first I was having bad cramps that everyone thought was pms, yet i never had a period. I finally got to a doctor and after way to many tests had told me i had endometreois and had to have a minor procedure. Ok so for a young girl who had no experience in anything like this i was scared. I had no idea wat was happening to me. All i knew is that i was in to much pain and I believed that everyone around me did not believe me about how bad i felt. It was the worst pain I have ever felt to this day. When I went in for this procedure I was told It would be fast and i would go home not to long after. During the procedure the doctors went out to my parents and told them that i di dnot have endometreosis and that I had golf and tennis ball sized tumors on both of my ovaries and if they did not remove them right now that they would burst and i would die. Of course they told them to take them out. I remember waking up at 3.30 and wondering why i felt so much pain on my stomach and why i was still in the hospital. They moved me to a room after reovery and I was loaded up on pain killers and I was so out of it for a few days. I had over 100 staples and a lot of stiches. The doctors came in with my family to explain to me what had happened but because I had to many painkillers I had no clue what happened really until I went home. I was devastated. It took me a long time, years to really move on. I was on horomone replacement for a ong time and because i was so young they never got it right. Never until I finally after 10 years went off these pills. I was a rollar coaster and for a young girl in her 20s it really took a lot away from me. I gained a lot of weight and was a mess. There was no help for me that young. Once the doctor was done with me it was done. I had nothing left. I really dealt with a lot of issues.
16 years later I am so glad to be alive. I am married to a great guy who loves me even if I can never have his children. That means a lot. He is supportive.
I wish for better knowledge and research on this cancer. More help for young girls. Something better then what I had. I am thankful to be alive and well now.
Thank you for reading this.

Last updated on: 01/25/2010


Comments:

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